It’s been 7 months since my last post. I keep trying to convince Lincoln to take over the blog. I would love to hear his perspective. I continue to be glad that Lincoln has a good attitude. Every morning when he’s ready to get up he happily says, “Let’s do this thing!”
In September 2016, 5 months after becoming decannulated, Lincoln had a surgery to close his stoma. At least that’s what I thought they were doing. But actually they roughed it up so that it would have fresh tender skin exposed in order to close on it’s own. The healing was a bit of a painful process. Now he enjoys a wicked scar on his throat and likes to make up awesome stories of how he got it.
Once his stoma closed he could be considered for a bipap machine at night to keep his lungs healthy. Again, this was a bit of a lengthy process to get all the settings correct as well as a mask that fit him well. He still has a hard time going to sleep with it on, so the night caregiver waits until he is asleep then slips it on.
Lincoln is in grade 10, and does well in school. He loves to do art, and one of his drawings was selected to be in an art show in Calgary.
Lincoln’s Make A Wish came true in October 2016. He wished for a Strike Force wheel chair to play soccer. Make A Wish representatives as well the Boston Pizza sponsors set up the surprise at the gym where he plays soccer. Once Lincoln arrived for practice they wheeled the special soccer chair out of the storage closet and surprised him. We took a bunch of pictures and there was pizza and snacks for everyone!
We are still being spoiled by wonderful people who serve us. We had a sweet family do the 12 days of Christmas to us. We eagerly anticipated each gift left anonymously on our door step. We always wondered what the items would be because they correlated with the song. And as you know, there are a lot of birds in the 12 days of Christmas. We received such things as canned pears, turtles chocolates, dove soap, kinder surprises, chocolate milk, ring pops, bird seed feeders, slinkies, recorders and so on. This was such a special part of Christmas for us. Months later the kids still sing the song and try and remember each day.
We also received an anonymous and generous monetary gift at Christmas time. Gratefully Rich and I went out for a nice dinner. We were also able to buy Christmas food and ingredients for the family. And we got a nice gift for each of the kids at home. My heart is just so full of gratitude and love for the goodness God continues to provide for my family through angels here on earth.
Our family came home from one of the kids Christmas concerts and we were just taking off our coats and boots and we heard some rustling outside our door. We opened it up to find our porch filled with wrapped presents. No one was around. There were 2 gifts for each of us. The kids excitedly brought them in the house and put them under the tree. We feel so loved and supported. We are just overjoyed with the acts of service we receive.
Lincoln ended up with pneumonia at the beginning of the year. This is going to be a constant challenge for him. He was not required to stay overnight in the hospital, and we were able to nurse him back to health at home.
Lincoln celebrated his 16th birthday with family at home. He had a nice dinner and birthday cake and played games with his siblings. His Young Men’s leader along with the boys in the ward planned a surprise party for him at the church. It’s so nice to know that Lincoln is remembered and treated so kindly.
Mckay takes Lincoln out on a weekly basis. They enjoy meals together, going to movies shopping for guy stuff, or just going for a drive. It’s so important to me that these two keep building their relationship.
In our recent General Conference, Elder Evan A. Schmutz talked about the purpose in suffering; and why bad things happen to good people. I am sure we have all wondered this at one point or another. He explains that it’s to see if we will be faithful in tribulation and also to help us learn compassion for others. He said that suffering does not teach us anything unless we deliberately become involved in learning from it. Trials should sanctify us. Lincoln’s trial is definitely sanctifying him.
Lincoln smiling through his hospital treatment.
Lincoln receiving his Strike Force chair
Lincoln and Emma